Ontopic Health Thread: post your AIDS, diseases and infekshunz here.

You're poor now, so you also have different experiences.
No ur poor.

Actually Ive been poor in MD. You are like falling over the best healthcare in the US here. I have Medstar system, UMM system, JH isn't one hospital either. Even my friends in VA say it's way different there.
 
Correct sir.
Don't come south if you like quality healthcare.
This is about as far south as I can stand. I went to Newport News once and almost died from the heat and humidity.

But anyplace rural has dodgy healthcare. Like Vermont isn't known for its world class hospitals.
 
This is about as far south as I can stand. I went to Newport News once and almost died from the heat and humidity.

But anyplace rural has dodgy healthcare. Like Vermont isn't known for its world class hospitals.
My head still spins from the pneumonia last year when the redneck country doc said to me "Boi, you got just about the WORST case of pew monia we done EVER seen!".
Yes, that happened.

Also, when asking about a treatment plan of action they were real vague.
"We don't riiiiightly know" ain't a good fukkn answer you hayseed.
 
My head still spins from the pneumonia last year when the redneck country doc said to me "Boi, you got just about the WORST case of pew monia we done EVER seen!".
Yes, that happened.

Also, when asking about a treatment plan of action they were real vague.
"We don't riiiiightly know" ain't a good fukkn answer you hayseed.
I get that a lot sorta. My first PC I had was just like "your case is so complicated theres not much for me to do", she also wouldn't make time to see me when I had super bad lymphoedema and when I finally saw her she was like you need to go to the ER. I told my PHA "we need to change doctors" like 30 minutes later.

My PHA is stellar though. Like anyone with any serious disease should get a health advocate. She sets up appointments and argues with doctors and just chills w/ me sometimes.
 
I was supposed to have a visiting nurse come today but they didn't :( I need to call them and ask if I can borrow a nurse anyway. Endoscopy Friday. My PHA isn't gonna drive from Glen Dirty to Rosedale (Bel Aire)
 
I've got a hilarious bout of burn out. My body is railing against me working out my time in my job and is periodically shutting off things I might need to function. Started with losing my voice, then when that didn't stop me working my back pulled, and now that hasn't stopped me my jaw is wanting to close shut and won't open more than inch without being in pain. On days where I'm not meant to be there I'm feeling pretty okay. It's amazing what stress does to a body.
 
So my 81yr old dad got diagnosed with stage 1b melanoma. He went for the melanoma surgery and then they took a couple lymph nodes to see if it spread. Dr said it didn't look bad but they wouldn't know until they got the lymph node results back. Turns out it did spread so now he is stage 3 and has to do immunotherapy.
The immunotherapy stuff is pretty good.

I was looking at it when I was diagnosed two months ago.

Best of luck to your dad. It's no fun.
 
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My endoscopy today was turned down by my insurance as "not medically necessary", they also denied my xifaxan prescription (it makes me not have psychotic breaks and is supppppeeerrrrr expensive), both are on appeal.
 
I had the worst migraine in my life yesterday. So painful I nearly cried. Raced home fighting nausea to get my meds. Waited an hour for them to start kicking in, ate a little dinner and went to sleep at 6pm. Woke up at 2:30am, thankfully with no migraine, been awake since. I need a nap.
 
I had the worst migraine in my life yesterday. So painful I nearly cried. Raced home fighting nausea to get my meds. Waited an hour for them to start kicking in, ate a little dinner and went to sleep at 6pm. Woke up at 2:30am, thankfully with no migraine, been awake since. I need a nap.

omg any idea what triggered it ?
 
Do you take a notebook when you go and take notes about things they say? Maybe start? When I'm dealing with more complicated than usual stuff I generally take notes.
Well there's usually not many specific instructions except eat good dont drink and "clean up your sleep schedule". Getting really sick of people assuming I drink, they have my labs, you can see drinking like 4 months out with blood cell counts. I'm already cognizent of most of the medical topics because I spend a lot of time researching. I usually have my health advocate with me too (she was on vacay and she works for UM not JH) and she makes sure I dont get railroaded.

in the end it didn't matter, they sent me to the transplant center and the idea was to get me a dedicated hepatologist. My transplant hepatologist is great but shes really hands off.
 
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