Ontopic Health Thread: post your AIDS, diseases and infekshunz here.

BUT.

You'd have readier access to the death with dignity folk.

Thats what makes it a tougher choice. When I’m here, right where I am, I could stand to live another day. I’ve had a pretty good week so far. I miss the cat etc, but I don’t feel like I’d rather be dead.

Unless the cable goes off again, then I’ll be crying like a baby.
 
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I know I’m a dummy. I don’t know if ignorance is a bliss in my situation though.

I guess I’ll be assessed every so often (this time it was a six month period of time and future periods my differ) to decide my status. I don’t know what I get (or don’t get) with status change, and that scares me. Last January/February, I didn’t qualify for shit even though my income was what it is etc. and I was discharged from the hospital with one chest tube. A week later, I’m back in ambulance and after another 10 days in the hospital, I refuse to be discharged because I was sicker then than when I’d arrived. Then the flatline on the operating table happened.

I suddenly qualify for more, like a visiting nurse! It turns out, the sicker you get, the more you qualify for.

My situation now. Well, not too different than it’s been since this started, I’m in a care center. My meals are prepared FOR me and I can’t do that at home. I’m to the point now where I can’t even make a sandwich. When I’d try, I’d have to take several breaks while doing it and ultimately lose my appetite by the time the sandwich was completed. So I’m gaining weight. What happens when I gain weight? It threatens my status. My oxygen saturation numbers are pretty good when I’m just sitting here. That threatens my status too.

I’ll use this space to let you know I have Beavis in my head asking if I’m threatening him now.

To me, I envision losing “hospice status” as possibly being packed back up and sent home. Upside? I get to see my son’s cat. Edibles. My sound system. Downside? Too many to list. I don’t want to leave here now. But I want the fucking TV to work. A chaplain from hospice came yesterday and when I said “my entire world is inside these four walls and I NEED a TV that works properly and a robust wifi signal/connection to the internet.

When I interviewed the owner here (and she interviewed me) I had two main questions, and those were it. TV? Internet? Yes and yes. Well, count me in. Then suddenly, TV doesn’t work. Business is great for people in the foster care field right now. They have no problem filling beds. BUT if we didn’t have a pandemic and there were vacancies at care centers, they’d be damn sure to have “luxury” items like TV and internet working.

In my opinion anyway.
 
@Immigrant six months would be the longest period between evaluations. in order to "qualify" for hospice, they have to certify that if your current status progresses normally, you have a life expectancy of six months or less. so they may do more frequent checks, especially if anything changes, but for sure once you hit 6 months they re-assess.
 
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@Immigrant six months would be the longest period between evaluations. in order to "qualify" for hospice, they have to certify that if your current status progresses normally, you have a life expectancy of six months or less. so they may do more frequent checks, especially if anything changes, but for sure once you hit 6 months they re-assess.

Thank you for filling in blanks!

I just had the sit down with the gal. She explained it pretty much the same way you did too.

She’s gonna come by every two weeks. Her job is to make sure that my needs are being met, no matter how big or small, that are important to me being comfortable and what can be done to keep me comfy. She gets me, which makes me happy. She totally understood why having a working TV is so important to someone like me.

So she said anyhoo. Hmmm.
 
She’s a little heavier than what my old standards were but I’d hit it in a second. She’s beautiful. Her first name starts and ends with an A and isn’t really common but I’d rather not go barking it out here, not that I worry that one of you might go sniffing around, but maybe come one is watching me? I’m a paranoid idiot, remember. I’d kind of like to think that if I was 20-25 years younger, I’d definitely ask her out and she’d say yes without batting an eye. There seems to be chemistry there.

And I’m kind of morphined out of my mind right now because I had an incident this morning. This one scared the fuck outta me. I swear, they’re mini heart attacks. When I was in recovery mode, my O2 saturation was 76% and I was drenched with sweat. This was before my first morning pee, which made it more difficult.

Damn it. I have a few good days in a row then I start a day like this. It’s hard for me to remember that instead of “good days” and “bad days”, I now have chunks of good or bad hours.

I decided last night I need to reset my behaviors, and treat this place like home. I used to get in bed, watch some TV, turn everything off, and crash. At the hospital, totally different. TV on all night, up weird hours, etc. and I’ve been doing that here too. I also did it during the short time I had the hospital bed in my living room. I have to stop that, and last night I started.

Man, I just ramble the fuck on and on here. Breakfast smells awesome. The YouTube cook is here today thank goodness. The cuisine here suffers on her days off. Did I mention she’s learning how to cook everything by watching YouTube? WTF I’m sure I did cuz I can’t shut it.
 
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The waffles are so good on their own, they hardly need any syrup etc.

I have yet to see any margarine or butter on much of anything. Maybe once. I don’t understand that, but I’m too new to ask.
 
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The waffles are so good on their own, they hardly need any syrup etc.

I have yet to see any margarine or butter on much of anything. Maybe once. I don’t understand that, but I’m too new to ask.
All that food looks great, circumstances. be damned.

That's cool that she's using Youtubes to help her along. She's probably crammed into a budget but doesn't want to feeed you folks crap. Salute to the Cook!